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NoToChristianNationalism's avatar

My brother was born with a very rare condition that affects 1 in 100MM men. He was severely disabled: couldn’t walk, talk, or feed himself. His body produced uric acid - and he suffered tremendously from the day he was born until his untimely death at 7 years old. His care bankrupted our family. My father became an alcoholic, my mother was absent from grief. I raised myself from the age of 13. These people have no idea, no concept of the money it costs or the intensity it creates. To this day, I never had children because I was terrified of history repeating. My mother told me that had she known, she would have terminated the pregnancy - because no parent or family should be forced to have a front row seat to their child’s suffering.

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Barbara Schwartz's avatar

In a late in life career change, I worked as a medical assistant, primarily in abortion care. A few patients’ charts were flagged with a discrete post it that said FA (fetal anomaly). We were very tender with them, had ink pads and parchment paper for footprints, made genetic testing available for those who wished to delve deeper. The doctors would break protocol to allow partners in the procedure. It was, and is, part of the continuum of care. To subject these people to a “maternity” charade is beyond mere cruelty to sadism.

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